Progressive Coercion
There's a pattern I've noticed recently. People, especially parents or service providers, decide that a certain way of treating disabled people is wrong. They speak out about it. And generally that's a good thing. But then it somehow turns into yet another set of rules of behavior that disabled people are coerced into, even if they resist it.
An example: Awhile ago, some people started saying that treating developmentally disabled people, especially adolescents and adults, as if they're much younger than they are (in aspects that aren't necessary for proper care - ie not including things like changing diapers) is not a good thing. Many developmentally disabled people would agree with this. But somehow, for many service providers and parents, they interpreted this to mean that developmentally disabled people should not be allowed to act in ways considered typical of a much younger child. This led to things such as actively trying to discourage adolescents and adults from playing with dolls or other 'immature' interests and play. And that, like pressuring them to act younger, is oppressive.
Another example: David Hingsburger, in his video The Ethics of Touch, said you shouldn't go around hugging developmentally disabled people that you work with. Which I agree with. But then, in reply to a question about the developmentally disabled people who often initiate hugs, he described a method for training them out of that. Because somehow, they're not allowed to want touch beyond what most people their age do. (My policy is to go by mutual comfort. If they seem to want the touch, and I'm okay with it, then it's fine. This means they either expressly consent to the touch or initiate it. For example, I hug back if they hug me, and sometimes I ask children if I can pick them up and twirl them around.)
The biggest problem with this pattern, in my opinion, is that the focus is still on how the disabled person should behave, what the disabled person should do. And it's still being dictated by nondisabled people. They challenge some specific problem, while ignoring the power dynamic of helper and helped, the controlling others 'for their own good' rather than letting them have freewill and choice. The power dynamic, and the focus on the disabled person as the problem, remains unchanged, meanwhile they get to act like they're all progressive and liberal and helping the cause of disability rights.
An example: Awhile ago, some people started saying that treating developmentally disabled people, especially adolescents and adults, as if they're much younger than they are (in aspects that aren't necessary for proper care - ie not including things like changing diapers) is not a good thing. Many developmentally disabled people would agree with this. But somehow, for many service providers and parents, they interpreted this to mean that developmentally disabled people should not be allowed to act in ways considered typical of a much younger child. This led to things such as actively trying to discourage adolescents and adults from playing with dolls or other 'immature' interests and play. And that, like pressuring them to act younger, is oppressive.
Another example: David Hingsburger, in his video The Ethics of Touch, said you shouldn't go around hugging developmentally disabled people that you work with. Which I agree with. But then, in reply to a question about the developmentally disabled people who often initiate hugs, he described a method for training them out of that. Because somehow, they're not allowed to want touch beyond what most people their age do. (My policy is to go by mutual comfort. If they seem to want the touch, and I'm okay with it, then it's fine. This means they either expressly consent to the touch or initiate it. For example, I hug back if they hug me, and sometimes I ask children if I can pick them up and twirl them around.)
The biggest problem with this pattern, in my opinion, is that the focus is still on how the disabled person should behave, what the disabled person should do. And it's still being dictated by nondisabled people. They challenge some specific problem, while ignoring the power dynamic of helper and helped, the controlling others 'for their own good' rather than letting them have freewill and choice. The power dynamic, and the focus on the disabled person as the problem, remains unchanged, meanwhile they get to act like they're all progressive and liberal and helping the cause of disability rights.
Labels: David Hingsburger, developmental delay, power, volunteering